Common Data Elements (CDEs) Repository

The NIH HEAL Initiative’s Common Data Elements (CDEs) program aims to harmonize the data collected by the initiative’s studies, enhancing the comparability of various data sets generated by HEAL research.  

HEAL researchers and potential applicants conducting research with human participants should also prioritize using the HEAL CDEs. Researchers outside the HEAL Initiative conducting pain research may also be interested in using validated and structured questionnaires.

The “core” questionnaires in ten domains, demographic information, and opioid usage are required for the clinical pain HEAL grants and are organized depending on the type of pain and population being studied.

Most HEAL pain studies would fall into one of several categories that would determine their core questionnaires: adult acute pain, adult chronic pain, or pediatric pain (both acute and chronic pain). These categories are listed in the “core or supplemental” column.

The “Advanced Search” function can filter the questionnaires by the specific type of pain research being conducted (acute vs. chronic), the patient population (adult vs. pediatric), and the domain (research topic) of the questionnaires.

For core questionnaires with multiple versions listed (e.g., GAD-2, GAD-7), studies can use any one of these versions, but at a minimum must use the shortest version listed.

The text box allows users to search for a specific questionnaire or research topic area.

Files can be downloaded directly from the links in the second column. Filenames that include the suffix “CRF” are questionnaires (case-report forms) and filenames with the suffix “CDE” are the CDE files with variable names and coding information.

To download more than one file at a time, use the checkboxes on the left hand side to select the files you would like to download. After you click the "Download Selected Files" button, you will get a message at the top of the page saying, "Export file created, Click here to download." This will download a zipped folder with your selections.

“Download list” allows users to download the list of questionnaires that are displayed as search results.

For questionnaires that are copyrighted and require a license for use, the files linked below contain instructions on how to properly obtain a license for use.

If you have any questions, please contact [email protected].

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Description File Name File Language Core or Supplemental Research Topic
The Adverse Childhood Experiences (ACEs) Questionnaire is a 10-item measure used to measure childhood trauma. Spanish
  • Supplemental
 Trauma/PTSD
The Applied Mindfulness Process Scale (AMPS) measures the frequency with which people use various mindfulness approaches to cope with daily stressors. English
  • Supplemental
 Mindfulness
The Adult Responses to Children's Symptoms (ARCS) - Protect Subscale measures adults protective behaviorism response to children's pain. English
  • Supplemental
 Protective Factors
The Acculturation Rating Scale for Mexican Americans II (ARSMA II) measures the cultural orientation toward Mexican culture and Anglo culture. English
  • Supplemental
 Acculturation
The Acculturation Rating Scale for Mexican Americans II (ARSMA II) measures the cultural orientation toward Mexican culture and Anglo culture. Spanish
  • Supplemental
 Acculturation
The Acculturation Rating Scale for Mexican Americans II (ARSMA II) measures the cultural orientation toward Mexican culture and Anglo culture. English
  • Supplemental
 Acculturation
The Acculturation Rating Scale for Mexican Americans II (ARSMA II) measures the cultural orientation toward Mexican culture and Anglo culture. Spanish
  • Supplemental
 Acculturation
The Arthritis Self-Efficacy Scale (ASES) is a self-report measure of beliefs reflecting confidence in one's capacity to function despite pain and control pain or other symptoms of arthritis. English
  • Supplemental
 Pain Intensity
The Allodynia Symptom Checklist (ASC-12) assesses frequency of cutaneous allodynia symptoms during headache attacks. English
  • Supplemental
 Headache/Migraine
The Allodynia Symptom Checklist (ASC-12) assesses frequency of cutaneous allodynia symptoms during headache attacks. English
  • Supplemental
 Headache/Migraine
The Pain Episode Frequency and Severity Measure- ASCQ ME v2.0 assesses frequency, timing, and severity of sickle cell pain events, serving as an indicator of SCD severity over the prior year. English
  • Supplemental
 Pain Intensity
The Pain Impact Item Bank- ASCQ ME v2.0 is a patient-reported outcome measurement system that measures pain impact of Sickle Cell Disease (SCD) on adults. English
  • Supplemental
 Pain Intensity
The Alcohol Use Disorders Identification Test (AUDIT) Interview is a clinician administered questionnaire to assess alcohol consumption, drinking behaviors, and alcohol-related problems. English
  • Supplemental
 Substance Use